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The same procedure should be followed whether the investigators intend to collect new samples and data or whether they wish to use previously archived data sets.

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For identifiable or identified samples, should conditions under which samples may be shared be clarified or should individuals always retain control on their samples?

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If significant medical or mental health concerns are present, they must be reasonably well controlled.

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However, archival research materials, although coded and not identified, must remain linkable to individuals.

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This court concluded that the imposition of such a duty was appropriate in light of advances in medical technologies which make it possible to predict the occurrence of genetic defects and to diagnose abnormalities in the unborn fetus.

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But the need to clarify the law is important insofar as its uncertainty may impede legitimate treatment, teaching, study or research or even, at worst, may encourage illegitimate uses of human tissue.

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Concerning anonymized samples, a number of statements consider anonymizing samples acceptable in order that they be banked and subsequently used in retrospective and prospective studies without obtaining an explicit consent.

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